20 books for parent carers, by parent carers

Ernest Hemingway famously claimed “there is no friend as loyal as a book”. And for parents caring for a child with disability or complex medical needs – especially in those early months and years – these words can ring very true.

Here are 20 titles written for parent carers, by parent carers, sharing all kinds of experiences, wisdom and advice.

Bloom: Finding Beauty in the Unexpected – A Memoir by Kelle Hampton

Far from the Tree: Parents, Children, and the Search for Identity by Andrew Solomon

The Cracks that Let the Light In: What I learned from my disabled son by Jessica Moxham

The Invisible Life of Us: Welcome to the joyous, messy, colourful world of parenting kids with additional needs by Mandy Hose and Kate Jones

Miracle of Love: A Mother's Story of Grief, Hope and Acceptance by Ondine Sherman

Raising a Rare Girl: A Memoir by Heather Lanier

Blue Sky July: A True Tale of Love, Light and ‘Impossible Odds’ by Nia Wyn

Unconditional Love: A Memoir of Filmmaking and Motherhood by Jocelyn Moorhouse

The Still Point of the Turning World by Emily Rapp Black

Special: Antidotes to the obsessions that come with a child's disability by Melanie Dimmitt

Changed by a Child: Companion Notes for Parents of a Child with a Disability by Barbara Gill

Tender: The Imperfect Art of Caring by Penny Wincer

The Skies I’m Under by Rachel Wright

Expecting Adam: A true story of birth, transformation and unconditional love by Martha Beck

Can’t Breathe: A Memoir by Laesa Faith Kim

A Heart That Works by Rob Delaney

Sunlight Burning at Midnight by Jessica Ronne

A Different Dream for My Child: Meditations for Parents of Critically or Chronically Ill Children by Jolene Philo

The Four Walls of My Freedom: Lessons I’ve Learned from a Life of Caregiving by Donna Thomson

Dear Parent Carer: Things I Know Now I Wish I Knew Then by Ali Jeffries

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We’d love to know your parent-carer book recommendations. Get in touch with our team athello@hibi.health.